Bryners

Sorry that it has taken a week to update on Bryn. First I wanted to post a cute hair do I did on her a couple months ago. It is the waterfall braid. Her hair is so thin that it doesn't stay in very long but it is super cute.

Anyway, Brynlee has hypoglycemia only at the moment and no diabetes. I am super happy with that even though hypoglycemia sucks too, but not nearly as bad. I wish that was the end to Bryn's horrible luck though. We still have to do blood sugar checks on her twice a day. She has her own pink glucose meter coming in the mail though so hopefully that will ease her anxiety. Today she was diagnosed with asthma officially by the allergist and has to have an epi-pen like Ben and Aiden. She had an anaphylactic type reaction to a food she ate on Friday night and scared us a little. So $550 later for just her to get two inhalers and months worth of singular, oh and that does not include the epi-pens, which the pharmacy ran out of. Including Ben's allergy medication, it was $750 in one months worth. That is absolutely horrible. What the HECK!!!! our insurance doesn't cover medication and only covers 70% after a huge deductible of other medical. I am very grateful, don't get me wrong, but I don't know if it's even worth it if we end up paying 100% of everything till our HUGE deductible is met on medical only (not meds). BLAH ! That does not include Aiden's meds or Ben's diabetes supplies. Now that I have that off my chest because it ticks me off more then anything, I decided to make my kids their own medical bag with their names on it and decorated the way they want with all their meds in it. Then I won't get anything lost or mistaken for anybody elses. I know this sounds pretty pathetic. There has to be some organization is this chaos.

I shouldn't write on my blog when I have had such a crappy day. My poor baby girl has pneumonia AGAIN for the second time this month. I have come to the conclusion that my kids are going to have horrible lungs for the rest of their lives. The allergist said blame it on the genes. I am happy to say that none of these medical costs is for ME. YAY!!!! 1 out of 5 people. That's better then all 5 of us I guess. That was my one positive thing I came up with right now.

Trooper

My little sister, Mikayla took this super cute picture of Brynlee a little while ago. I absolutely love it. I can't tell you how much I adore Bryn's little personality. She has the best imagination. She has imaginary pets, fairy's, and friends from the netflix shows she watches. Her vocabulary astonishes me on most days. She has a very protective nature. She will protect Kynz from anything that might be harmful. She will follow her as she is climbing the stairs to make sure she doesn't fall backwards. She constantly blows me kisses randomly throughout the day. Although she is very much a daddy's girl, her and I have our moments of closeness. Through all the crap her body puts her through, she is still a loving, courageous little girl. On top of her lymphocytic colitis, Bryn was diagnosed today with hypoglycemia and possible type 1 diabetes. Because that particular colitis is an autoimmune disease, she is at much greater risk of developing more autoimmune diseases like diabetes. Not only does she have that against her, but because she has a parent with type 1 diabetes, this adds to the greater risk. So as I looked in her terrified eyes today that were streaming with tears, while she was being poked a total of 4 times because of collapsed veins due to dehydration (despite drinking a ton) and being cathed for a urine sample, my heart broke and I was screaming inside why does a perfect little angel that absolutely loves life have to go through so much in her short life of 3 years? I personally think that it is more a test for me then her. A test of patience and love. I never thought that I would ever have kids with chronic health conditions that would try my patience, but I did. Sometimes, I admit that it gets the best of me and I ask "why me, or why them?" Why do I have to constantly worry about whether they are breathing in the night or now, if bryn will wake up at all due to a low blood sugar. Really??? Talk about anxiety. It's not fair... but then again life isn't fair, but in my opinion, when it comes to children, life can be brutal. Long story short. Bryn was acting very weird to me Saturday morning. She had come in our room multiple times for a drink of water early in the morning. I thought it was odd that she was drinking so much the day before and having to pee a ton compared to her normal. I honestly pushed the thought of diabetes out of my head and thought it was most likely a UTI or something. By the 4th time coming in our room for a drink she just laid on our bedroom floor, which was very unlike her. Once she is awake, she stays awake. Something didn't feel right to me. I mentioned it to Ben that I thought something might be wrong with her. He told me to stop being paranoid (in a nice way). So I brushed off the feeling. At about 9:00 I finally decided to get up and check on her. She was asleep on the couch, which she never does after she has been awake. I went to wake her up and she was almost completely unresponsive, clammy and completely white. I tried everything to wake her and she wouldn't. I went and got Ben, telling him that there was something wrong. He came out to the couch and tried to arouse her and wake her up. Nothing but little moans. She was lifeless in his arms. I told him to grab his glucose monitor cause living with a diabetic, you know the signs of hypoglycemia and she had all of them. Sure enough it was very very low. We got her to open her mouth so we could push yogurt in. The only thing we had that wasn't chewable. 30 minutes later or less she was back to her energetic self. talk about another freak out moment for me. Whatever the tests reveal tomorrow on whether or not she has type 1 diabetes, she is a fighter and a trooper no matter what life throws in her way. She is such a good example to me. Just another rock to step over.

Growing Up

I totally don't like to post without a picture, but my laptop died and this computer doesn't have a card reader. Anyway, I took the cutest pictures of Kynzee when she turned 10 months, which I will post later. So now that my baby girl is almost 11 months next week, I am finally posting. Kynzee hasn't gone a month without seeing the doctor since she was born due to many illnesses. So I am always updated on her growth. Unfortunately, she hasn't grown much. Her weight has stayed the same for 3 months now. Now we get to take her to a GI doctor at Primary Children's just like we did with Brynlee. I kept asking the doctor to wait one more month to see if I could make a difference with her diet. Our insurance is horrible and it is extremely expensive to see specialists and all the tests they run. But because of Brynlee's history, he is worried that she might have the same malabsorbtion disease because she is following the same growth pattern. He told me we couldn't wait anymore. Kynzee is such a happy little girl. She can play patty cake by herself. She loves to snuggle especially with mom. She is definitely a mamma's girl. She loves to play legos with Bryn and Aiden (picture coming later) and she will join in if all the kids are wrestling on the floor or just playing. We are still trying to get her to sleep through the night. We almost have her there. She is such an amazing baby. I am so blessed to be her mom.