Bryn is the most loving, stubborn little girl I know besides myself and her dad. With everything that has happened to her in her short life of 6 years, it's amazing to me that she is so happy and positive. She is good reminder to me of how good life is no matter what hardships you go through. I am very very grateful that her illnesses aren't terminal, but she will live with them for the rest of her life along with some potential others.
After everything falling apart the last couple months, my amazing friend told me to do a fund raiser for Bryn to help pay for her medical bills. Go to the link and check it out.
gofundme.com/brynleehatch
This is what it says. Please share it with your friends and family. I love you all.
Brynlee Hatch is the 6 year old daughter of Ben and Starlene Hatch. She is also the little sister to Aiden and big sister to Kynzee.
Brynlee was recently diagnosed with Lymphocytic colitis, Esinophilic Esophagitis (EOE), Lymphocytic Proctitis (lymphocytes in the rectum), and Lymphocytes in the duodenum, which the pathologist said was seen in Celiac Disease. The symptoms of these diseases include chronic diarrhea, vomiting, weight loss, severe cramping and stomach pain, among others.
An Allergist put Brnylee on a complete elimination diet free of dairy, gluten, wheat, nuts, peanuts, soy, eggs and shellfish to treat the EOE and Celiac. The same week that Brynlee got diagnosed with these diseases, her father lost his job and the medical insurance that came with it. We desperately need help paying from Brnylee's medical bills and special food expenses. We also need help getting the funds to get Brynlee the treatment she needs at the Denver Children's Hospital a hospital that has actually seen the Lymphocytic Colitis disease in a child.
Please help our longing, fun spirited, precious little girl get the medical help she needs to be free of pain and debilitating symptoms. Thank you for your gracious love and support. Read further to know the rest of Brynlee's story.
When Brynlee was 6 months old she stopped growing. By the time she hit her first birthday, she still only weighed 12 pounds. She had test after test done with no answers. Then at 14 months she developed chronic severe diarrhea . With her weight still being at 12 pounds, she began to drop lower. After seeing 2 gastroenterologists at the Children's Hospital in Salt Lake City Utah, she was finally taken to surgery at age 2 to help determine why this precious baby was not absorbing any nutrients. 2 weeks later the doctor called us with the news that our baby had a disease that was not seen in children but in the elderly 60-80 years old, Lymphocytic colitis. The disease is only diagnosed by biopsies taken of all parts of the gastrointestinal tract. The doctor did not quite know how to treat this illness in a child. They tried various medications that did not help much.
Brynlee is now a 6 year old loving little girl that has dealt with the chronic diarrhea, stomach pain, and multiple hospitalizations due to severe illness and dehydration her whole life. 6 months ago her symptoms became worse. Not only did she have to deal with the pain and diarrhea, but she developed vomiting and extreme pain after eating anything. We took her to see the 4th doctor who looked at her pathology report from age 2 with extreme disbelief. She told us that she didn't believe that this disease could be plaguing our daughter. As her parents, we left frustrated and disappointed. Finally after many requests from us as her parents, the doctor did another biopsy of Brynlee's colon and esophagus. We waited another 2 weeks for results. In the meantime, Brynlee was losing more weight and becoming more fatigued to her already very small, weak body. To the doctor's surprise, she still had the Lymphocytic colitis plus Esinophilic Esophagitis (EOE), Lymphocytic Proctitis ( lymphocytes in the rectum) and Lymphocytes in duodenum, which the pathologist said was seen in Celiac Disease.
The doctor came out and told us to see an allergist for the EOE and that she didn't want to treat the lymphocytic colitis because "It's just not seen in kids." We were furious. Just because they have never seen the disease in a child in Utah doesn't been it's impossible. We want our baby girl to get better or at least not be in chronic pain and so fatigued all the time.
Love the Hatch's
